There were some very good things about today and then some not so good things.
First of all, I heard a couple people say that the dance last night was packed and so we'd like to thank everyone who went and contributed. We are so very blessed by the friends and family that we have. Unfortunately, Ryan was in the hospital and we weren't able to attend.
Ryan's swelling has dropped tremendously, even a ton since yesterday. I thank God for that. Aubrey was coughing a lot last night, so while laying awake listening to her, I was constantly praying for Ryan. God surely doesn't let me forget to pray :)
I was happy that he had improved so much, but a little dismayed that he slept all day. He got sick a little around lunch time, but he said he had orange juice for breakfast and so I figured it was maybe a little too acidic. Then he got sick again around 6:30 and he temp went up to 100.5. So, he is downgraded again to only clear liquids and back on 2 more antibiotics until they know what's going on.
The plan is to remove his catheter tomorrow and they also talked about removing his central line, they might do that soon as well in case some infection could be coming from there. We pray that they will determine the cause and treat it quickly so that he can still get home this week.
It had sounded like he might come home Wednesday, but now I don't believe it will be that soon, hopefully by the end of the week though.
Please continue to pray for strength and positive spirits for all of us.
-A
Sunday, August 9, 2009
Saturday, August 8, 2009
Making the Best of It
Aubrey and I did some shopping yesterday morning and picked up her pictures at Sears and then came to the hospital to visit Ryan. Aubrey can only last about an hour, but she really enjoyed yesterday's visit. The nurses brought her a cake and a little purse and puppy dog. She also got a crown, mirror, and bracelet. I would post some pictures, but can't do that from the hospital. After our visit with Ryan, we went to Chuck E Cheese's and had lunch with Aubrey's cousins, Kaitlyn and Camryn. Aubrey then went home with Grandma and the girls and they went swimming. She was still going strong when I got home at 8:30 last night.
The swelling in Ryan's legs has gone down a lot, his stomach is still swollen, but isn't as tight as it has been. He was on full liquids, then got moved back to clear liquids, and now he's back to full liquids. Dr. Marinella seemed to think that things were progressing well and that he will probably get to come home next week, by himself, without most of the swelling, without his port, and without his catheter.
Dr. Marinella would like Ryan to start getting off his pain meds, but he is so swollen in some places that it is painful and they gave him tylenol, but that isn't helping. Please pray that the swelling will go down so that the pain goes away.
-A
The swelling in Ryan's legs has gone down a lot, his stomach is still swollen, but isn't as tight as it has been. He was on full liquids, then got moved back to clear liquids, and now he's back to full liquids. Dr. Marinella seemed to think that things were progressing well and that he will probably get to come home next week, by himself, without most of the swelling, without his port, and without his catheter.
Dr. Marinella would like Ryan to start getting off his pain meds, but he is so swollen in some places that it is painful and they gave him tylenol, but that isn't helping. Please pray that the swelling will go down so that the pain goes away.
-A
Thursday, August 6, 2009
A Better Day
Well, there are a few improvements in Ryan today. His stomach is not as tight as it has been. Although it didn't look like the swelling had gone down much, there was definitely a difference when you touched it. His legs were a little less swollen today and when he worked with the physical therapist, he wasn't as tired as he had been the last few days.
His diet has been upped to a full liquid diet and he had potato soup for supper. He was glad to be off chicken broth. If he tolerates that for a couple days, he'll be moved to soft diet.
He lost 5 lbs from yesterday to today and they gave him another shot of lasiks this afternoon, hoping that will continue to help him get rid of the extra fluids he is holding.
He is off the heart monitor and doesn't have to be hooked up to his IV except when he's getting his antibiotics. So, lots of changes today, we pray tomorrow continues the upward trend.
Please continue to pray that things get better. Aubrey and I are missing Ryan at home.
-A
His diet has been upped to a full liquid diet and he had potato soup for supper. He was glad to be off chicken broth. If he tolerates that for a couple days, he'll be moved to soft diet.
He lost 5 lbs from yesterday to today and they gave him another shot of lasiks this afternoon, hoping that will continue to help him get rid of the extra fluids he is holding.
He is off the heart monitor and doesn't have to be hooked up to his IV except when he's getting his antibiotics. So, lots of changes today, we pray tomorrow continues the upward trend.
Please continue to pray that things get better. Aubrey and I are missing Ryan at home.
-A
Wednesday, August 5, 2009
Another Day
Not much difference in Ryan today. I think that every day we're in the hospital, the more we want to be home. The nurses really noticed that Ryan wasn't that talkative today. I wasn't either . . .
Swelling hasn't changed much, they did another abdomen scan around lunch time today. The nurse and I looked at it and we concluded that it looked different from the last one, but that's all we could figure. The doctor wasn't back in today, so we'll have to wait until tomorrow to find out what it shows.
I wish there was another way to take care of some of the swelling, I've missed the doctor the last couple days, hope to talk with him tomorrow.
-A
Swelling hasn't changed much, they did another abdomen scan around lunch time today. The nurse and I looked at it and we concluded that it looked different from the last one, but that's all we could figure. The doctor wasn't back in today, so we'll have to wait until tomorrow to find out what it shows.
I wish there was another way to take care of some of the swelling, I've missed the doctor the last couple days, hope to talk with him tomorrow.
-A
Tuesday, August 4, 2009
Another Update
Ryan worked with the physical therapist a little more this afternoon again. He didn't do much more walking today, but he said he walked into his bathroom by himself tonight. He had chicken broth and jello for supper tonight. He is still getting TPN which is his nutrition and so he doesn't have much of an appetite. They said once he starts eating a little more, they will start taking him off the TPN.
He is running a slight temp, around 99. Were not sure why, the nurses don't seem too worried, but they're watching it.
Please continue to pray that both of us keep our spirits up and that Ryan's appetite returns and that the swelling goes away.
Thanks for the continued prayers.
-A
He is running a slight temp, around 99. Were not sure why, the nurses don't seem too worried, but they're watching it.
Please continue to pray that both of us keep our spirits up and that Ryan's appetite returns and that the swelling goes away.
Thanks for the continued prayers.
-A
Good News
Well, Ryan isn't home yet, but he's getting closer each and every day. Yesterday they took his ng tube out of his nose and they also took him off his oxygen. His swelling has gone down slightly, but not very noticably. He is hoping that it will start to go down a little faster. Yesterday he was allowed to have sips of water, today he got a tray of clear liquids - juice, jello, etc. He has to be able to eat those without getting nauseus before they will move him up to anything with more substance and he has to be able to eat solid foods before he will be allowed to go home. He is also hoping that his swelling will go down before he gets to come home because he isn't sure that he'll be able to get his pants on with his legs so big!
The physical therapist came and worked with him for just about 5 minutes yesterday. After he took a shower, mostly sitting in the chair, but standing a little, we walked up and down the hallway 3 times. He was pretty tired after doing all that, but he is sitting in the chair working on the computer right now. He said he wants to walk more this afternoon so hopefully the walking will help a little with the swelling as well.
Ryan is getting a little down that he probably won't be home for Friday, which is Aubrey's birthday. Please pray that he keeps his spirits up. I'm disappointed too, but it will all be ok in time, I'm just ready to have him home. I think Aubrey is ready for him to be home too, she's tired of going from house to house while I'm at the hospital. Also continue to pray for the swelling and the eating.
-A
The physical therapist came and worked with him for just about 5 minutes yesterday. After he took a shower, mostly sitting in the chair, but standing a little, we walked up and down the hallway 3 times. He was pretty tired after doing all that, but he is sitting in the chair working on the computer right now. He said he wants to walk more this afternoon so hopefully the walking will help a little with the swelling as well.
Ryan is getting a little down that he probably won't be home for Friday, which is Aubrey's birthday. Please pray that he keeps his spirits up. I'm disappointed too, but it will all be ok in time, I'm just ready to have him home. I think Aubrey is ready for him to be home too, she's tired of going from house to house while I'm at the hospital. Also continue to pray for the swelling and the eating.
-A
Sunday, August 2, 2009
Holding Steady
Ryan is holding steady, ready for the swelling to decrease so that he can get up and move around like normal again. He is also ready to get the tube out of his nose, but the surgeon said a couple more days for that. I'm also ready for things to begin improving because I really want him to be home for Aubrey's birthday, which is Friday. The nurses are pulling for him, but saying it might be a week before he's ready to head home.
They weighed Ryan yesterday and he weight 193 lbs. That is 40 lbs over what he weighed when he came in. They gave him some lasik last night which makes him pee a lot, he weighed 10 less pounds today, but you can't really notice a difference. Although Ryan is generally more positive than I am, I know that he's also getting a bit frustrated that things are moving a little faster. We continue to pray that the swelling will go away and that his stomach becomes less hard so that they can take the tube out of his nose.
Please continue all your prayers for us, we appreciate them.
-A
They weighed Ryan yesterday and he weight 193 lbs. That is 40 lbs over what he weighed when he came in. They gave him some lasik last night which makes him pee a lot, he weighed 10 less pounds today, but you can't really notice a difference. Although Ryan is generally more positive than I am, I know that he's also getting a bit frustrated that things are moving a little faster. We continue to pray that the swelling will go away and that his stomach becomes less hard so that they can take the tube out of his nose.
Please continue all your prayers for us, we appreciate them.
-A
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